Assumptions and Ignorance 

Hey Guys,

For those of you that know me are aware that I have had digestive problems for quite some time. Back in November, I attended a gastroenterologist outpatient appointment. The specialist wasn’t listening to what I was saying. He ordered an endoscopy and colonoscopy. This involves drinking litres of a bowel preparation to clean it out. I just can’t jump up and run to the bathroom. It was for this reason I asked to be admitted. I was admitted on Wednesday lunchtime. We were sent to triage where the doctor asked to have my ng tube inserted, have a chest X-ray and start the bowel prep straight away. It took 4 and a half hours to get a bed. The ng tube was put in, but the prep didn’t start until 8:30 pm so I was awake all night as the medicine was pumped through the tube. This means a lot of pads changes. It’s not nice laying in a soiled pad. It’s humiliating having to do that and then be cleaned up. Due to this fact, I wasn’t ready for my procedures in the morning. However, due to my mere determination, I pushed myself to tolerate the medicine and was able to have them done in the afternoon. The ignorance occurs because nurses are not taught how to assist pwd. Some of them didn’t understand what cp is and assume that I am paralysed. They inject me with pain relief and say  “You won’t feel this anyway.” Or they talk down to me like I’m 5 years old. Needless to say I wasn’t showered once. Not only that, the staff don’t communicate with each other. There’s a reason why I do the things I do. “Professionals ” come along and tell me to do something without listening to me and looking at the whole picture. Thank goodness for my staff. My advice is be patient, but firm when verbalising what you require.


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